From Life Support to Strength: Surviving HLH, Vision Loss, and the Fight to Come Back Stronger
Wed Feb 04 2026
Dr. Brett Scott sits down with physiotherapist and strength coach Jared Maynard to unpack surviving a near-fatal autoimmune condition, navigating progressive vision loss, and rebuilding strength, purpose, and leadership from the ground up.
Takeaways
Jared's journey began with a sudden illness that escalated quickly.
He experienced severe symptoms leading to hospitalization.
The diagnosis of HLH was a turning point in his health crisis.
Life support was a critical phase in his recovery process.
Jared's physical fitness prior to illness played a crucial role in his survival.
Rehabilitation involved relearning basic physical functions.
Support from family and friends was vital during his recovery.
Jared returned to powerlifting, achieving personal records after recovery.
His experience highlights the importance of resilience and determination.
Jared continues to face challenges with vision loss post-recovery. Choroideremia affects one in a hundred thousand people, primarily men.
Night blindness is often the first symptom of choroideremia.
The diagnosis of legal blindness can come unexpectedly and disrupt life plans.
Adapting to vision loss involves both practical changes and emotional processing.
Public perception of blindness can lead to misunderstandings and assumptions.
Using assistive technology, like a white cane, can be emotionally heavy.
Empathy from others who have faced similar struggles can provide comfort.
Blindness is not a binary condition; it exists on a spectrum.
The journey of adapting to a disability is ongoing and complex.
Maintaining hope and purpose is crucial in the face of chronic illness. Pain is subjective and cannot be judged by others.
Empathy is crucial in supporting those who are suffering.
Sitting with someone in their pain can be more helpful than offering solutions.
Misdiagnosis in healthcare can lead to prolonged suffering.
Life perspectives change significantly after experiencing near-death situations.
Memento Mori serves as a reminder to live fully and appreciate life.
The mundane aspects of life can distract from what truly matters.
Memories and experiences are invaluable, even if they come with pain.
Singing and creative expression can help process emotions.
It's important to enjoy life while we have it.
Chapters
00:00- Introduction to Jared's Journey
01:08- The Onset of Illness
03:46- The Hospitalization Experience
10:01- Diagnosis and Initial Treatment
12:11- Life Support and the Fight for Survival
17:58- The Road to Recovery
24:05- Rehabilitation and Rebuilding Strength
30:47- Returning to Powerlifting and Life After Illness
33:34- Ongoing Challenges and Future Outlook
34:00- Understanding Choroideremia: A Personal Journey
39:04- Navigating Life with Vision Loss
44:14- The Emotional Toll of Adapting to Blindness
48:58- Facing Misunderstandings and Assumptions
56:47- The Courage to Be Seen and Fight Back
01:05:08- Understanding Pain and Empathy
01:07:00- The Importance of Sitting in Suffering
01:09:27- Navigating Misdiagnosis and Healthcare Challenges
01:11:38- Life Perspectives and the Reality of Mortality
01:15:20- Memento Mori: Living with Awareness
01:19:10- Reflections on Life After Near-Death Experiences
01:23:28- The Value of Memories and Experiences
More
Dr. Brett Scott sits down with physiotherapist and strength coach Jared Maynard to unpack surviving a near-fatal autoimmune condition, navigating progressive vision loss, and rebuilding strength, purpose, and leadership from the ground up. Takeaways Jared's journey began with a sudden illness that escalated quickly. He experienced severe symptoms leading to hospitalization. The diagnosis of HLH was a turning point in his health crisis. Life support was a critical phase in his recovery process. Jared's physical fitness prior to illness played a crucial role in his survival. Rehabilitation involved relearning basic physical functions. Support from family and friends was vital during his recovery. Jared returned to powerlifting, achieving personal records after recovery. His experience highlights the importance of resilience and determination. Jared continues to face challenges with vision loss post-recovery. Choroideremia affects one in a hundred thousand people, primarily men. Night blindness is often the first symptom of choroideremia. The diagnosis of legal blindness can come unexpectedly and disrupt life plans. Adapting to vision loss involves both practical changes and emotional processing. Public perception of blindness can lead to misunderstandings and assumptions. Using assistive technology, like a white cane, can be emotionally heavy. Empathy from others who have faced similar struggles can provide comfort. Blindness is not a binary condition; it exists on a spectrum. The journey of adapting to a disability is ongoing and complex. Maintaining hope and purpose is crucial in the face of chronic illness. Pain is subjective and cannot be judged by others. Empathy is crucial in supporting those who are suffering. Sitting with someone in their pain can be more helpful than offering solutions. Misdiagnosis in healthcare can lead to prolonged suffering. Life perspectives change significantly after experiencing near-death situations. Memento Mori serves as a reminder to live fully and appreciate life. The mundane aspects of life can distract from what truly matters. Memories and experiences are invaluable, even if they come with pain. Singing and creative expression can help process emotions. It's important to enjoy life while we have it. Chapters 00:00- Introduction to Jared's Journey 01:08- The Onset of Illness 03:46- The Hospitalization Experience 10:01- Diagnosis and Initial Treatment 12:11- Life Support and the Fight for Survival 17:58- The Road to Recovery 24:05- Rehabilitation and Rebuilding Strength 30:47- Returning to Powerlifting and Life After Illness 33:34- Ongoing Challenges and Future Outlook 34:00- Understanding Choroideremia: A Personal Journey 39:04- Navigating Life with Vision Loss 44:14- The Emotional Toll of Adapting to Blindness 48:58- Facing Misunderstandings and Assumptions 56:47- The Courage to Be Seen and Fight Back 01:05:08- Understanding Pain and Empathy 01:07:00- The Importance of Sitting in Suffering 01:09:27- Navigating Misdiagnosis and Healthcare Challenges 01:11:38- Life Perspectives and the Reality of Mortality 01:15:20- Memento Mori: Living with Awareness 01:19:10- Reflections on Life After Near-Death Experiences 01:23:28- The Value of Memories and Experiences